Nouvelles et événements

Loi sur la non-discrimination génétique

En décembre 2018, la Cour d’appel du Québec a donné son avis selon lequel la Loi sur la non-discrimination génétique ne constituait pas un exercice valide du pouvoir du Parlement de légiférer en matière criminelle. L’avis du Québec n’a pas invalidé la Loi sur la non-discrimination génétique, mais l’a mise en péril. En réponse à l’avis de la Cour d’appel du Québec, Parkinson Canada, dans le cadre de la Coalition canadienne pour l’équité génétique, a déposé un avis d’appel renvoyant la décision à la Cour suprême du Canada (CSC). Cette audience a eu lieu le 10 octobre 2019. 

Le 10 juillet 2020, la CSC a annoncé sa décision de maintenir la loi!  

La Loi sur la non-discrimination génétique interdit à quiconque d’obliger une personne à subir un test génétique ou à en communiquer les résultats comme condition préalable à la fourniture de biens et services, à la conclusion ou au maintien d’un contrat ou d’une entente avec elle ou à l’offre de modalités particulières dans un contrat ou dans une entente. Il prévoit des exceptions pour les professionnels de la santé et les chercheurs. Le texte prévoit d’autres protections relatives aux tests génétiques et aux résultats de ceux-ci.

Pour en savoir plus : https://www.cbc.ca/news/politics/stefanovich-supreme-court-of-canada-genetic-information-1.5643245 (en anglais seulement)

 

 

You Are Not Alone – e-Book

COVID-19 has placed a strain on all of us, especially people living with Parkinson’s. People with Parkinson’s are vulnerable because of their underlying condition, which could make their Parkinson’s symptoms worse if they were to get the virus. However, Parkinson’s can also be extremely isolating under normal circumstances, and this year has intensified those feelings for many of us. Our Parkinson’s community has found a way to come together and connect virtually by sharing personal stories and words of encouragement. So many compelling messages of overwhelming courage and vulnerability have been compiled into an e-book to share with community members, with an important reminder: You Are Not Alone. Whether you’ve been recently diagnosed, or have been living with Parkinson’s for years, this e-book is for you. If somebody close to you is living with Parkinson’s or if it’s the reason you’ve lost someone in the past, this e-book is for you too. Because three things are truer today than ever before:

  1. We deeply need human connection right now.
  2. People and families living Parkinson’s are the most resilient, resourceful, determined people in the country.
  3. You are not alone. We’re here for you. You are part of an amazing community.

Visit: parkinson.ca/you-are-not-alone/ to reserve your copy today.      

 

ONLINE EVENTS

Les événements affichés en anglais sont présentés en anglais seulement

On World Brain Day, July 22, the World Federation of Neurology and International Parkinson and Movement Disorder Society will host a joint webinar at 10:00 AM ET

REGISTER NOW

This esteemed panel of speakers will take part in a webinar discussion about the global impact of Parkinson’s Disease:

  • Dr. Susan H. Fox​ — Chair, Medical Advisory Council, Parkinson Canada
  • Prof. William M. Carroll — President of the World Federation of Neurology​
  • Prof. Tissa Wijeratne — Chair of World Brain Day, World Federation of Neurology​
  • Claudia Trenkwalder, MD​ — President of the International Parkinson and Movement Disorder Society​
  • Prof. Wolfgang Grisold​ — Secretary General of the World Federation of Neurology​
  • Associate Professor Victor Fung​ — Co-Chair of the Taskforce on Pediatric Movement Disorders​

Join us as we move together to end Parkinson’s disease on July 22, 2020, at 10:00 AM ET

 

 

When Life Gives You Parkinson’s

Playing a crucial role in the success of the first season, Parkinson Canada is strengthening its commitment to the When Life Gives You Parkinson’s podcasts with Larry Gifford, only 45 years old at the time when he was diagnosed with Parkinson’s disease in August 2017. In sharing his diagnosis publicly, he discovered that, despite how far-reaching the effects of Parkinson’s disease are, there were few resources that took a human-centered approach.   In addition to the advocacy and awareness he does through the podcast, Gifford also sits on The Michael J. Fox Foundation Patient Council and is on the board of the Pacific Parkinson’s Research Institute When Life Gives You Parkinson’s is available on Apple Podcasts, Google PodcastsSpotify or wherever you find your favorite podcasts. Listen now.  

 

Parkinson Canada Presents Online Exercise and Wellness

July 29, 2020, 3pm EDT Mindfulness & Parkinson’s: How to Use it to Manage Pain & Emotions Presented by Gabrielle Pagé, a clinical psychologist and researcher with expertise in pain management. She explains the impact mindfulness can have on one’s brain and overall well-being. She also provides practical tips on how to integrate mindfulness in your everyday life to manage pain, stress and emotions. Watch Live on Facebook Watch on YouTube Anytime  

Watch Anytime: Simple Techniques for Relief from Stress, Fear & Anxiety Nicole Mahabir, the founder and director of JAI Wellness, a platform for health education, mindful living and well being. In this webinar, she will discuss holistic practices and wellness routines that you can incorporate throughout your day to help with resilience and good rest. Discover mindful breath practices, meditation, cognitive behavioural therapies, relaxation techniques and sleep routines. Watch on YouTube Anytime  

Live and Recorded Exercise Classes Continue

Staying active is key to managing both motor and non-motor symptoms of Parkinson’s. Parkinson Canada’s Lance Letain is a certified instructor for the Canadian Society for Exercise Physiology. This month, he’ll offer live classes on Mondays, Tuesdays and Fridays at 2:30 p.m. EDT, on the Parkinson Canada SuperWalk Facebook page as part of SuperWalk: The Movement throughout the month. You can also revisit any of Lance’s past classes, as well as playlist of PWR! Moves and Dance classes on the Parkinson Canada YouTube page. If you’re taking part, consider registering your activity with The Movement for your chance to win monthly prizes and to inspire others to stay moving this summer. Join Lance Live Mondays, Tuesdays and Fridays at 2:30 p.m. EDT on Facebook Get Active with Lance, Dance Classes or PWR! Moves on YouTube Anytime    

 

Questions? Contactez communications@parkinson.ca 

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